Angela, Tracey & Catherine 'There are never answers. It's Long Covid and it will take time.'




Details


Name: Angela


Location: Cork


Infection Date: 20th March 2020


Profession: Home




Hopes for the Future


Answers, Understanding, Access to appropriate treatments



My Story



My husband and I had covid at the same time. We had exact same symptoms at the time. We just about avoided his kit aa location according to our GP, but we're very ill at home. It took 6 weeks to get mobile again and somewhat back to feeling ok although weakness and SOB (shortness of breath) persisted. Doctors never once validated our post covid or long covid issues, always saying it's "possibly" long covid. We continue to this day with a variety of health issues i.e. fatigue, non specific rash/itch, swollen painful glands, and gastro issues. Both of us have very similar issues. We both suffered severe set backs after the 2nd dose of the AZ vaccine. We believe that we had the same strain of the virus prevalent in 03/ 2020 but cannot get a medic to validate this. We are afraid of what may trigger symptoms again in the future and cannot get any advice on same from mainstream medics...

Most Challenging Aspect


Ongoing unpredictable flare-ups of unpredictable symptoms




Most Positive Aspect


none



Details


Name: Tracey


Location: Kildare


Infection Date: 1st April 2020


Profession: Medical




Hopes for the Future


Medical assistance



My Story



The fear of having these symptoms for the rest of my life. My inability to work and do what I used to do. I am only 53 but feel so old now. I am breathless and ache all over .

Most Challenging Aspect


Being so tired and breathless. Its severity can increase at random.

Most Positive Aspect


none





Details


Name: Catherine


Location: Carlow


Infection Date: 24th September 2020


Profession: Civil Servant




Hopes for the Future


For doctors to do follow ups and to keep patients informed



My Story



I have been suffering with fatigue, anxiety joints pain, palpations and chest pains. I now have asthma and I find that I'm just forgotten about. I am on a list for a long covid clinic but really I don't hear anything from my doctor unless my symptoms are worse and I need tablets. I feel tired all the time and feel old it's frustrating and I feel like a burden to my husband who I would be lost without him. There are never answers just it's lc and it will take time. That's frustrating. I went to physio yesterday to help build my strength and hopefully this will help.

Most Challenging Aspect


Trying to work from home while recovering, which is hard to keep focused or just to stay awake.




Most Positive Aspect


My family's support



Some people prefer to stay anonymous while telling their stories. If you or anyone you know has been affected by Long Covid, you can find solace in the Long Covid Facebook group.


Click here to join.

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